"Life's challenges are not supposed to paralyze you; they're gifts given to help you discover who you are."

Sunday, August 25, 2013

SOS

Results from last week's scan indicated increased metabolic activity at the original site (vaginal cuff) as well as in the liver.  An icing on the cake of this news was that there is also a new spot on the right lobe of the liver. So that means (drum roll please)  MORE CHEMO!!  Same Old Shit. Trying new drug combo this time.  Honestly not sure if that means I've hit the point of the body's resistance to the drugs I was on, or if the doc figured out that the first combo platter just wasn't the right choice; I will likely never know, since straight answers are hard to find.

Again wondering if I'm ever going to get used to hearing this type of news. I always have hope; there are always "signs" of healing/improvement that are apparently a mental game I'm playing on myself. Does that hope go away after being kicked in the teeth a given number of times?

This particular call came as I was riding in the car on the way home from a short and restless vacation/getaway, which means my family got to hear the news with me.  It was a somewhat horrific scene, which I would have played differently if the fam wasn't within earshot of one side of the conversation. Almost immediately after I conveyed an abbreviated version of the news delivered by my doc's nurse, my strong and fiercely independant teenager started sobbing and repeating "you can't leave; I NEED you" which is enough to break any mother's heart in two. 

The conversation continued later that night in the safety of her bedroom, and again the phrases "I need you" and "dad needs you" kept coming up. And while I tried my best to dissuade the notion that our lives revolve around me, the truth was hovering in the room.  When your immediate family is a threesome, losing one of the three is is bound to have a major impact that I cannot control. And while I mutter comforting statements designed to relieve the fear of the unknown, my heart is ripping in half because I know that I may very well not be here to make sure she finishes high school with good grades and good friends.  I may not be here to do everything I can to make sure she gets a good SAT score and gets into a college of her choice.  I won't be able to influence the type of men she dates; I won't be able to help her get ready on her wedding day.  All of it rips up my guts, but I smile bravely and tell her everything will be OK.

6 comments:

  1. ..... pondered my response longer than I should have. I so appreciate your honesty. your writing reaches the core pain and hope in me. this news SUCKS. damn, damn, damn. fuck, fuck, fuck. the 3 parts, losing one tugged so hard on my gut because I know our reality is not easy for us or anyone who loves us.

    my daughter just got a DUI - she just turned 23. Her dad, my X, blamed it on my cancer. not in a bad way but in a hopeless way. even my X husband needs me. and we have control over NOTHING.

    hugs.....hope, tears, love......

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  2. Hi GM,
    I don't know if moms ever stop being needed. And in a way, it becomes part of our identity... that's why trying to figure out how to pull out of that family weave is not easy; it's like giving up part of yourself to make them strong and able to go on without you. It's like exercising--I really don't want to, but I know I should. But you're right, it sucks.
    Hoping your reality is progressing positively.
    ~D.

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  3. I admire your courage and honesty. Hugs to you and wishes for abundant peaceful and happy moments whenever possible to counter the painful ones.

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  4. Thanks Anon, glad you're still reading!

    ~D.

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  5. Dee, wow, it's bad enough to have that dreaded phone call, but from your drs nurse and on your cell phone in the car with your kids. I am so sorry to hear this. Your daughter will always need you, When I was diagnosed at age 52 I wanted my mom!! She had passed 4 years before with multiple myeloma. You have been so strong and an inspiration throughout this journey. I appreciate your blog, esp since there aren't many of us with vaginal cancer. You and your family are in my prayers & stay strong!!!
    babe

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  6. Thanks babe1; glad you're still reading! Hope you're doing well :)

    ~D.

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